National Webinar on World Rare Diseases Day

Organizer: The Department of Media Studies & IQAC, Christ Nagar College, Trivandrum in association with Focus Games (UK)

About the Webinar

  • When: 28 February 2023 at 6:00 pm IST
  • Free Registration
  • E-certificates will be issued to those who participate and submit the feedback form
  • Platform: Zoom and YouTube Live

Speakers and Topics

Dr. K Thangaraj, Director, Centre for DNA Fingerprinting and Diagnostics (CDFD), Hyderabad
TOPIC:  Marriages and Rare Genetic Diseases

Dr. Mohua Chakraborty Choudhury, DST STI Policy Fellow,  Centre for Policy Research – Indian Institute of Science (IISc), Bengaluru
TOPIC:  Challenges faced by the rare disease community in India and community level interventions for supporting them

Register Here

World Rare Diseases Day is an annual observance that aims to raise awareness about rare diseases and their impact on patients’ lives. It is held on the last day of February every year. The day was first established in 2008 by the European Organization for Rare Diseases (EURORDIS) and its Council of National Alliances as a way to bring together patients, families, healthcare professionals, and researchers to help improve the lives of those living with rare diseases. A rare disease is defined as a condition that affects fewer than 1 in 2,000 people. There are over 7,000 rare diseases, and many of these are genetic and have no cure. World Rare Diseases Day provides an opportunity to raise public awareness about rare diseases, advocate for policy changes to improve access to diagnosis, treatment, and care, and encourage investment in research to find cures and better therapies for rare diseases.


Advisory Committee:

Fr Dr Titto Varghese (Director & Manager)

Dr Jolly Jacob (Principal)

Manju Rose Mathews (HoD)

Programme Coordinator: Emil S Abraham

Thara CB, Neenu PK, Assistant Coordinators

Student Coordinators: Nikitha S, Mitreyi Venugopal

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